Our doctor called us this morning and woke me up the first call said that we had an appointment with the neonatal surgeon on Tuesday. I said that was fine and thanked them for making me the appointment. About an hour later I got another call saying that our Doctor got off the phone with the surgeon and the surgeon said that she needed Avery to get to 33 weeks along before she had a good chance of operating and having Avery survive. Our doctor said she didn't think Avery would make it that long in utero without her heart stopping with all the fluid built up in her abdomen putting stress on all her organs. So they both agreed they needed to do something and that something would be putting a shunt through me into Avery's tummy and leaving the shunt in her until birth and that shunt will constantly drain any fluid in her abdomen into my amniotic fluid and that we needed to have that done tomorrow. I asked the risks and they said that we always have risks putting a needle into my amniotic sac (the risks being that it could break my water and put me into preterm labor or give her fetal distress.) They said that the risk in not doing it though is much higher than the risk in doing this, after a lot of thought and a long talk with my doctor I agreed to have this done tomorrow.
They said that it would be at the hospital and I'll need to fast for 8 hours. We will go into the ER and our doctor, the neonatal surgeon and another OB will all be in the room and I'll get an epidural (most likely) and some laughing gas to keep me calm and we'll go through and insert the shunt during an ultrasound and try to drain the fluid. I'll be kept overnight for monitoring to make sure that I don't go into preterm labor and to make sure that she is okay and stays calm and happy. I will not meet the surgeon Tuesday anymore, I'll just meet and consult with her tomorrow. Doing this does not ensure she'll make it to 33 weeks alive but it gives up the best chance so we can have our C Section and have an alive baby that can go immediately into surgery. That is when they'll take out the shunt as well so it will stay in her the remainder of my pregnancy.
I then got a third call from our doctor asking me to come in today and get the steroid shot to help her lungs develop quicker and it also helps with the blood vessels in her brain. I agreed and went in and got that. It wasn't too bad of a pain, my hip and butt area were a little sore for awhile but I'm okay. I'll get a second shot of this steroid tomorrow at the hospital before my procedure. I'm terrified something is going to go wrong. Our doctor showed me the shunts that she has sitting on her desk waiting for tomorrow when she will meet us at the hospital.
Please God just let Avery get through this, let her have no distress and let my amniotic sac accept it no problem. Let these shots help her lungs and let her little body hold on for the next 7 weeks and keep developing so she can be born alive at 33 weeks with no fluid on her stomach and strong enough to withstand surgery. I am terrified for my child's life. She's been through far too much and she isn't even born yet. I'm supposed to be able to be able to protect her from all pain and evil while she's in utero and tomorrow she will feel some pain with a needle being inserted in her tiny stomach. I'm so scared, I don't know what to do. I am doing everything in my power to keep this baby alive and it still doesn't feel like I'm doing enough.
I go into the hospital at 1:30 tomorrow and have the procedure at 3:30 and then will be there overnight. It shouldn't take more than 45 minutes or an hour to complete this procedure and we should see the fluid start to drain immediately after inserting it. Please keep us in your thoughts and prayers. She needs to get to 33 weeks, she needs to fight this, she needs to live.